“I will gradually restore to you the energy that you have lost”
For the past… well, since Noah has been born, we have been sleep deprived. Children with Angelman Syndrome have a tendency towards sleep disturbances, and Noah is no exception. For the past 8-9 months though, it has gradually gotten worse, to the point of pure exhaustion… no exaggeration. Seriously… no exaggeration. I’m telling the truth. Really. Ok! We recently started Noah on a med that will hopefully help him rest more peacefully at night, and help us get better sleep as well! For the past four nights, nighttime has not been the dread of my day. Most days I try my hardest to soak up every.last.minute so that we don’t have to do the “nighttime thing”. I *hope* that I am not speaking too soon, and even if I am, oh well… All three of us are feeling like a new season is upon us! We are no longer in a season of exhaustion, but a season of renewal and rest. I’m hopeful and optimistic!
Our start to summer here in upstate NY has been nothing but gorgeous! Sorry to the Kansans who are sweating it out… at least it’s good for the farmers :) We have been staying busy, as usual. We started taking Noah swimming a couple nights a week, and he has loved it! It’s a great way for us all to enjoy ourselves! Noah has also gotten back into the swing of his busy therapy routine! He’s walking all over the place independently, and his little face just shows the pride he feels.
It’s a beautiful thing.
We have recently been working on stairs and building up his endurance on walks. He was able to walk 4 blocks a couple of times this past week and go up and down a staircase a couple of times! The joy that we feel watching him accomplish these challenges is indescribable! Raising our little guy to be more and more independent is breathtakingly freeing.